ADAPTACIÓN TRANSCULTURAL DE LA ESCALA CAREGIVERS QUALITY OF LIFE INDEX-CANCER PARA CUIDADORES EN COLOMBIA (Cross-cultural adaptation of the Colombian version of the Caregiver Quality of Life Index-Cancer (CQOLC))

Ricardo Sánchez Pedraza, Carol Jisseth Zarate Ardila

Resumen


Introducción: La mayoría de las escalas que evalúan la calidad de vida en cuidadores de pacientes oncológicos han sido elaboradas y validadas en idiomas diferentes al español, lo cual disuade su uso en población hispano-hablante. La escala Caregiver Quality Of Life Index-Cancer (CQOLC), que evalúa este constructo en este grupo poblacional, es el instrumento más empleado para tal fin; sin embargo, no se encuentra validada en Colombia. Considerando la relevancia de la evaluación de este constructo en el tratamiento integral de la población con cáncer, se presenta la traducción y adaptación transcultural al español colombiano de la escala CQOLC, para su posterior validación. Materiales y Métodos: Tras obtener el permiso del autor de la escala, ésta se tradujo directa e inversamente. Luego, se ejecutó la prueba piloto con una versión provisional en español, que identificó dificultades en la comprensión de los ítems o posibles molestias provocadas por los mismos. Resultados: La prueba piloto se ejecutó en 21 cuidadores de pacientes con cáncer que asistieron al Instituto Nacional de Cancerología en mayo del 2016. Durante la prueba piloto, se presentaron dificultades en la comprensión del ítem 5, por lo cual se decidió cambiar la redacción del mismo. El resto de los ítems se comprendieron fácilmente y se produjo una versión final del instrumento. Conclusión: Se encuentra disponible la escala CQOLC en español colombiano. Ésta escala podrá emplearse en el proceso subsiguiente de validación, para así estimar la calidad de vida de los cuidadores de pacientes con cáncer en el país.

 

Palabras clave: Calidad de Vida, Cuidadores, Neoplasias, Traducción, Lenguaje, Humanos, Encuestas y Cuestionarios, EORTC, Adaptación Cultural.

 

Abstract

Introduction: Most of the scales that evaluate quality of life in cancer caregivers have been designed and validated in different languages from Spanish which limits their utilization in Spanish-speaking population. The Caregiver Quality of Life Index-Cancer (CQOLC), which evaluated this construct in this specific group, is the most commonly used instrument in assessing quality of life among cancer caregivers. However, it is neither validated in Colombia nor in Spanish. Considering the relevance of this construct as part of the comprehensive treatment of cancer patients, we present the translation and cross-cultural adaptation of the scale into Colombian Spanish. Methods: We obtained the author’s permission. Then, the instrument was translated and back-translated. After that, we executed a pilot test with a provisional Spanish version, in order to identify difficulties at understanding items. Results: Pilot test was executed in 21 cancer caregivers that visited the Instituto Nacional de Cancerología in May of 2016. During the pilot test, there was difficulty at understanding the 5th item of the scale. Therefore, we paraphrased it. There were not additional problems at understanding the other items, and the final Spanish version of the scale was released. Conclusion: The CQOLC in Colombian Spanish is available. Now, it is possible to use it in the ulterior validation process, in order to estimate quality of life in Colombian cancer caregivers.

 

Key words: Quality of Life, Caregivers, Neoplasms, Translating, Language, Humans, Surveys and Questionnaires, EORTC, Cultural Adaptation.

DOI: http://dx.doi.org/10.21615/cesp.11.1.10


Palabras clave


Calidad de vida; cuidadores; neoplasias; traducción

Citas


Aronson, K. J. (1997). Quality of life among persons with multiple sclerosis and their caregivers. Neurology, 48(1), 74-80.

Bektas, H.A., & Ozer, Z. C. (2009). Reliability and validity of the caregiver quality of life index-cancer (CQOLC) scale in Turkish cancer caregivers. J Clin Nurs, 18(21), 3003-3012. doi:10.1111/j.1365-2702.2009.02915.x

Belle, S. H., Burgio, L., Burns, R., Coon, D., Czaja, S. J., Gallagher-Thompson, D., … Zhang, S. (2006). Enhancing the quality of life of dementia caregivers from different ethnic or racial groups: a randomized, controlled trial. Ann Intern Med, 145(10), 727-738.

Dewolf, L., Koller, M., Velikova, G., Johnson, C., Scott, N., & Bottomley, A. (2009). Eortc Quality of Life Group Translation Procedure. Bruselas.

Duan, J., Fu, J., Gao, H., Chen, C., Fu, J., Shi, X., & Liu, X. (2015) Factor Analysis of the Caregiver Quality of Life Index-Cancer (CQOLC) Scale for Chinese Cancer Caregivers: A Preliminary Reliability and Validity Study of the CQOLC-Chinese Version. PLoS ONE 10(2): e0116438. doi:10.1371/journal.pone.0116438

Glozman, J. M. (2004). Quality of life of caregivers. Neuropsychol Rev, 14(4), 183-196.

Halpern, M.T, Fiero M.H, Bell M.L. (2017) Impact of caregiver activities and social supports on multidimensional caregiver burden: analyses from nationally-representative surveys of cancer patients and their caregivers. Qual Life Res, 26(6), 1587-195

Hop, J. W., Rinkel, G. J., Algra, A., & van Gijn, J. (2001). Changes in functional outcome and quality of life in patients and caregivers after aneurysmal subarachnoid hemorrhage. J Neurosurg, 95(6), 957-963. doi:10.3171/jns.2001.95.6.0957

International Agency for Research on Cancer. (2011). Cancer survival in Africa, Asia, the Caribbean and Central America. In (Vol. 162, pp. 312). Lyon, France: IARC Scientific Publications.

Jönsson, A. C., Lindgren, I., Hallström, B., Norrving, B., & Lindgren, A. (2005). Determinants of quality of life in stroke survivors and their informal caregivers. Stroke, 36(4), 803-808. doi:10.1161/01.STR.0000160873.32791.20

Karabuga-Yakar, H., & Pinar, R. (2013). Reliability and Validity of Turkish Version of the Caregiver Quality of Life Index Cancer Scale. Asian Pac J Cancer Prev, 14 (7), 4415-4419.

Kaub-Wittemer, D., Steinbüchel, N., Wasner, M., Laier-Groeneveld, G., & Borasio, G. D. (2003). Quality of life and psychosocial issues in ventilated patients with amyotrophic lateral sclerosis and their caregivers. J Pain Symptom Manage, 26(4), 890-896.

Mahendran, R., Lim, H. A., Chua, J., Peh, C. X., Lim, S. E., & Kua, E. H. (2015). The Caregiver Quality of Life Index-Cancer (CQOLC) in Singapore: a new preliminary factor structure for caregivers of ambulatory patients with cancer. Qual Life Res, 24(2), 399-404. doi:10.1007/s11136-014-0768-7

Mahendran, R., Tan, J. Y., Griva, K., Lim, H. A., Ng, H. Y., Chua, J., . . . Kua, E. H. (2015). A pilot, quasi-experimental, mixed methods investigation into the efficacy of a group psychotherapy intervention for caregivers of outpatients with cancer: the COPE study protocol. BMJ Open, 5(11), e008527. doi:10.1136/bmjopen-2015-008527

Minaya, P., Baumstarck, K., Berbis, J., Goncalves, A., Barlesi, F., Michel, G., . . . Auquier, P. (2012). The CareGiver Oncology Quality of Life questionnaire (CarGOQoL): development and validation of an instrument to measure the quality of life of the caregivers of patients with cancer. Eur J Cancer, 48(6), 904-911. doi:10.1016/j.ejca.2011.09.010

Ministerio de Salud de Colombia. (4 de octubre de 1993). Resolución 8430 de 1993, por la cual se establecen las normas científicas, técnicas y administrativas para la investigación en salud. Recuperado de https://www.minsalud.gov.co/sites/rid/Lists/BibliotecaDigital/RIDE/DE/DIJ/RESOLUCION-8430-DE-1993.PDF

Nabuurs-Franssen, M. H., Huijberts, M. S., Nieuwenhuijzen Kruseman, A. C., Willems, J., & Schaper, N. C. (2005). Health-related quality of life of diabetic foot ulcer patients and their caregivers. Diabetologia, 48(9), 1906-1910. doi:10.1007/s00125-005-1856-6

Northouse, L., Williams, A., Given, B., & McCorkle, R. (2012). Psychosocial care for family caregivers of patients with cancer. J Clin Oncol, 30(11), 1227-1234. doi:10.1200/JCO.2011.39.5798

Northouse, L., Mood, D., Kershaw, T., Schafenacker, A., Mellon, S., Walker, J., . . . Decker, V. (2002). Quality of life of women with recurrent breast cancer and their family members. J Clin Oncol, 20(19), 4050-4064. doi:10.1200/JCO.2002.02.054

Rhee, Y. S., Shin, D. O., Lee, K. M., Yu, H. J., Kim, J. W., Kim, S. O., . . . Yun, Y. H. (2005). Korean version of the caregiver quality of life index-cancer (CQOLC-K). Qual Life Res, 14(3), 899-904.

Richardson A. E, Morton R., & Broadbent E. (2015) Caregivers' Illness Perceptions Contribute to Quality of Life in Head and Neck Cancer Patients at Diagnosis. J Psychosoc Oncol, 33(4), 414-432

Tang, W.R., Tang, S.T., & Kao, C.Y. (2009). Psychometric testing of the Caregiver Quality of Life Index-Cancer on a Taiwanese family caregiver sample. Cancer Nurs, 32(3), 220-229. doi:10.1097/NCC.0b013e31819b5ae8

The National Alliance for Caregiving the American Association of Retired Persons. (1997). Family caregiver in the U.S. Findings from a National Survey. Final Report.

Van Dam, F. (1986). Quality of life: methodological aspects. Bull Cancer, 73(5), 607-613.

Weitzner, M. A., Jacobsen, P. B., Wagner, H., Friedland, J., & Cox, C. (1999). The Caregiver Quality of Life Index-Cancer (CQOLC) scale: development and validation of an instrument to measure quality of life of the family caregiver of patients with cancer. Qual Life Res, 8(1-2), 55-63.

Weitzner, M. A., & McMillan, S. C. (1999). The Caregiver Quality of Life Index-Cancer (CQOLC) Scale: revalidation in a home hospice setting. J Palliat Care, 15(2), 13-20.

WHOQOL Group. (1995). The World Health Organization Quality of Life assessment (WHOQOL): position paper from the World Health Organization. Soc Sci Med, 41(10), 1403–1409.

World Health Organization, & International Agency for Research on Cancer. (2014). World Cancer Report 2014. Retrieved from Lyon, France.


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